The Event
Following the success of its world premiere as an official selection of the 2025 Tribeca Festival, the award-winning Matter of Time is coming to Pittsburgh to continue spreading EB awareness and bringing us closer to a cure!

We’re honored to bring the film to the iconic Roberto Clemente Museum for an unforgettable night! The evening will feature a cocktail hour, special screening, and a moving panel with EB families, leaders, and voices from the film to highlight how Pittsburgh's leadership in EB and rare disease research is revolutionizing the field!

​The Details
📍 WHERE: Roberto Clemente Museum: 3339 Penn Ave, Pittsburgh, PA 15201
🗓️ WHEN: January 14th, 2026
⏰ TIMING: Cocktail hour from 6-7PM followed by the film screening and Q&A panel from 7-9:30PM

Get your tickets and explore unique sponsorship opportunities below.

​Every dollar raised through this event directly supports innovative research that will accelerate treatments and cures for EB!

​Local Impact, Global Scale
In Pittsburgh, EBRP is partnering with game-changing institutions to drive breakthroughs in EB that will have ripple effects for rare disease globally. At the forefront is Krystal Biotech, headquartered in Pittsburgh, whose topical gene-therapy gel for EB unlocked a new paradigm for treating rare, genetic skin disorders. 

With strong collaboration from Pitt Children's, Carnegie Mellon, and Richard King Mellon and a regional ecosystem built on innovation, Pittsburgh is not just unlocking treatments locally, they're helping chart the roadmap for cures worldwide.